Make a donation via one of the global ROHHAD charity websites

research into finding a cure for ROHHAD…

…is funded 100% by your generosity. With ROHHAD being classified as an ‘orphan disease’ (typically defined as affecting fewer than 1-in-2000 people), it means that governments and pharmaceutical companies don’t allocate any research budget to finding a cure for children impacted by ROHHAD - so that means it’s down to us!

To date, ROHHAD charities have raised enough money to fund several research projects, but there’s still a huge amount of work that needs to be done - the ball is rolling, but there’s a long way to go and more money needs to be raised before we can find a cure.

Corporate Sponsors

If you work for a company which supports different charities each year, please consider proposing ROHHAD research as a beneficiary. ROHHAD International Consortium has no paid staff and is run entirely by volunteers, so 100% of any donations receive would go directly to funding vital medical research.

Last but certainly not least

No page on ROHHAD fundraising could be complete without a huge thanks to our Superhero Fundraiser Robert Downey Jr. We’re eternally grateful for everything he’s done in helping the search to find a cure for ROHHAD.